About UsDylan James Flinchum passed away peacefully at home on November 11th, 2021 at the age of 12.
Dylan fought his battle with Metachromatic Leukodystrophy with an unimaginable strength and resilience. He beat all the odds and taught so many what unconditional love, perseverance and strength really looks like. He allowed his family to live a full life filled with adventures while creating memories, always leading the way for us on this journey. There isn't a person who met Dylan who hasn't fallen in love and been changed by him. Dylan has been and always will be a true hero in the hearts of all who know him. Now our mission is to keep Dylan's memory alive by providing relief, support and assistance to families with children affected by Metachromatic Leukodystrophy and other life-threatening medical conditions by helping to raise awareness and providing financial support. We are a nonprofit 501 C 3 IRS approved charity |